Gracie Williams

  • WARRIOR'S Story
  • Comments
  • Supporters

From our blog


"On December 1, 2017, my husband and I received the phone call no parent wants to get. We were told that “they found something” on the MRI my five year old daughter, Gracie, had on her brain the night before, and that we needed to rush to the emergency room at OHSU Doernbecher Children’s Hospital.  The neurosurgeon told us that they found a tumor on her brain stem.  She was admitted to the hospital where she underwent surgery to biopsy the tumor that night


The pathology of the biopsy came back the following Thursday, December 7, and she was diagnosed with a brain tumor through and around her brain stem, that is a glioblastoma with molecular features of a high-grade glioma. It is an atypical form of Diffuse Intrinsic Pontine Glioma, DIPG, which is doctor speak for terminal brain cancer.  She was admitted to the hospital again that night, and underwent a second surgery in the morning to reduce the mass. They cannot remove it since it is intrinsic and part of her brain stem at this point.  They were able to remove an estimated 35-40% of the tumor, which the neurosurgeon said was *good* but they could not safely remove any more than that.


After recovering for a month, she begins radiation therapy on Monday, 1/8/18. Radiation will be every weekday for 30-40 sessions.  She will also be taking an oral chemotherapy drug for the next year, or so."


Supporters (17)

  1. Kirsten Barajas 
    49 years ago
    $30
  2. Michelle Barthel 
    49 years ago
    $50
  3. Kirsten Barajas 
    49 years ago
    $20
  4. tiffany bumpus 
    49 years ago
    $10
  5. Viviana Cortez 
    49 years ago
    $20
  6. Richard Candaele 
    49 years ago
    $20
  7. Kirsten Barajas 
    49 years ago
    $25
  8. Arianna Madrid 
    49 years ago
    $1
  9. Young Brave 
    49 years ago
    $240
  10. emery barajas 
    49 years ago
    $10
  11. Tirza Estrada 
    49 years ago
    $10
  12. Young Brave 
    49 years ago
    $1,000
  13. Phoebe Iacovides 
    49 years ago
    $200
  14. David Castro 
    49 years ago
    $40
  15. Allison Krist 
    49 years ago
    $10
  16. nathaniel curran 
    49 years ago
    $10
  17. JOSHUA CURRAN 
    49 years ago
    $10

This is a unique website which will require a more modern browser to work!

Please upgrade today!